You are not alone.

Looking after someone with a condition, or living with one yourself, can feel lonely. It shouldn’t. Behind every condition on this site there are organisations full of people who answer the phone, know what you are going through, and can help.

If someone is in danger right now, call emergency services first: 112 in Europe, 911 in the US and Canada, 999 in the UK. The organisations below are for everything after that moment: questions, support, training, community, and someone to talk to.

Epilepsy: support and helplines

After a first seizure or a new diagnosis, families often have a hundred questions: what is normal, what to tell school or work, when to worry. Epilepsy charities answer these questions by phone and online, put you in touch with others who live with epilepsy, and many offer seizure first-aid training for family, teachers and colleagues.

What to do if someone has a seizure →

Dementia / Alzheimer's: support and helplines

When someone you love starts to forget or get confused, everyday life changes for the whole family. Dementia support lines are there for practical questions, like staying safe at home, getting lost, legal and money matters, and for the harder conversations too. They can also point you to local groups and breaks for carers.

What to do if you find a confused person with dementia →

  • Alzheimer’s AssociationUnited States

    Free, confidential helpline for people living with dementia and the people caring for them, in over 200 languages.

    HelplineMany languagesFor carers

    800-272-3900

    Hours: 24 hours a day, 7 days a week

  • Alzheimer’s SocietyUnited Kingdom

    Dementia Support Line for advice, information and someone to talk to.

    HelplineFor carers

    0333 150 3456

    Hours: Monday to Wednesday 9am to 8pm, Thursday and Friday 9am to 5pm, weekends 10am to 4pm

Diabetes: support and helplines

Living with diabetes means daily decisions about food, medicines and activity, and a lot of new words at first. Diabetes organisations explain things in plain language, help with questions about school and work, and connect you with other families and local groups.

What to do if someone with diabetes has low blood sugar →

Severe allergy: support and helplines

A severe allergy can make every meal, party or school trip feel risky. Allergy organisations help families read labels, talk to schools and carers, and plan for emergencies. Many also share alerts when a product is recalled because of an allergen.

What to do if someone has a severe allergic reaction (anaphylaxis) →

Asthma: support and helplines

An asthma attack can be frightening, for the person and for everyone around them. Asthma organisations help you understand inhalers and triggers, make an action plan with your doctor, and talk to school or work. Some have nurses on the phone for the questions that come up between appointments.

What to do if someone is having an asthma attack →

Autism: support and helplines

Whether you are waiting for an assessment, have just had a diagnosis or have known for years, autism organisations can explain your rights, help with school and services, and point you to local support run by people who understand. Some are run by autistic people themselves.

How to help an autistic person in an emergency →

  • Autism Society of AmericaUnited States

    Information and referral to local support for autistic people and their families.

    HelplineInformation

    1-800-328-8476

  • Autistic Self Advocacy Network (ASAN)United States

    Run by and for autistic people: resources on self-advocacy, rights and autistic culture, and leadership training for autistic self-advocates.

    Run by the community itselfInformation

  • National Autistic SocietyUnited Kingdom

    Advice and guidance for autistic people and families, and help finding local support.

    Information

Non-verbal: support and helplines

When someone speaks with a device, signs, pictures or gestures instead of words, the world does not always listen. Communication organisations help families find the right tools, connect people who use AAC with each other, and remind everyone that communicating differently is still communicating.

How to communicate with a non-verbal person in an emergency →

  • US Society for AAC (USSAAC)United States

    Brings together people who use augmentative and alternative communication (AAC), their families and professionals, with webinars, events and a community blog.

    InformationOnline or email

  • Communication MattersUnited Kingdom

    Charity for people with little or no clear speech: help finding AAC assessment services, Communication Clubs, and a free first year of membership for AAC users and their families.

    InformationLocal groups

Deaf / hard of hearing: support and helplines

Whether hearing loss came at birth, slowly over the years or suddenly, there are organisations for every path: some help with hearing aids, tinnitus and everyday life, others are run by Deaf people and defend sign language and equal access. Many can be reached by text or email as well as by phone.

How to help a deaf person in an emergency →

Heart condition / pacemaker: support and helplines

After a heart attack, a diagnosis or a pacemaker fitting, it is normal to feel shaken and full of questions. Heart charities explain conditions and devices in plain words, help with getting back to everyday life, and connect you with others who have been through the same thing.

What to do if someone with a heart condition collapses →

  • American Heart Association Support NetworkUnited States

    Online support community where patients, survivors and caregivers share experiences and answer each other’s questions.

    Online or emailFor carers

  • British Heart FoundationUnited Kingdom

    Free Heart Helpline answered by experienced cardiac nurses, for questions about heart and circulatory conditions.

    Helpline

    0808 802 1234

    Hours: Weekdays, 9am to 5pm (not bank holidays)

Blood thinners: support and helplines

Taking a blood thinner every day, or living with the memory of a clot, can bring a lot of worry: about bleeding, other medicines, travel or what comes next. These organisations explain treatment clearly, help with the anxiety that can follow, and bring patients together.

What to do if someone on blood thinners is bleeding or hits their head →

  • National Blood Clot AllianceUnited States

    Peer support, free monthly patient webinars and guides on living with blood thinners, for patients and caregivers.

    Local groupsOnline or emailFor carers

    877-4-NO-CLOT (877-466-2568)

  • Thrombosis UKUnited Kingdom

    Information on blood clots and their treatment, help coping with worry after a clot, and patient support meetings.

    InformationLocal groups

Caring for the carer

Looking after someone you love is hard, and it is easy to forget yourself. Carers’ organisations help with rights, money and time off, and above all give you someone to talk to who understands. They are there for you, not only for the person you care for.

  • Family Caregiver AllianceUnited States

    Practical help for family carers: care planning, services by state, support groups, with resources in Spanish and other languages.

    For carersLocal groupsIn Spanish

    800-445-8106

  • Carers UKUnited Kingdom

    Helpline for carers: rights, benefits, practical support and someone who understands.

    HelplineFor carers

    0808 808 7777

    Hours: Monday to Friday, 9am to 6pm (including bank holidays)

Checked on each organisation’s official website, 15 October 2026.

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